Life With Myasthenia Gravis

CaringBridge is a no-cost, nonprofit health platform that surrounds family caregivers with support resources while they care for a loved one on a health journey, including those facing challenges like Myasthenia Gravis. The organization offers tools to share and document a health journey, simplify care coordination, and connect caregivers with a supportive community, as well as information about financial assistance options.

While shock may be the first reaction to learning of your Myasthenia Gravis diagnosis, denial is also common, as are anger and grief over the loss of health. Since most have not heard of this neuromuscular, autoimmune disease, even the name can be scary. All reactions are normal. It’s important to seek support resources, and there are also options for financial assistance to help manage the challenges that come with Myasthenia Gravis.

Your donation will help us continue our mission to provide financial assistance and support resources for those affected by Myasthenia Gravis in our community. Every dollar counts and will make a difference in the lives of those we serve.

Turning Point offers classes, programs, and tools that empower and inspire people affected by chronic or serious illness, including those facing challenges like Myasthenia Gravis. Additionally, we provide support resources and financial assistance to help individuals navigate their health journeys.

The Whole Person is a non-profit organization that connects people with disabilities, including those affected by Myasthenia Gravis, to essential support resources and financial assistance, while promoting independent choice and advocating for community change.

Accessia Health provides vital financial assistance for health insurance premiums, medication copayments, travel, and other essential medical expenses to individuals of all ages who have qualifying household income and diagnosed chronic medical conditions, including Myasthenia Gravis. They also offer various support resources to help navigate these challenges.

Angel Flight Central's mission is to serve people in need by arranging charitable flights for health care or other humanitarian purposes. Every year, Angel Flight Central (AFC) volunteer pilots and supporters provide hundreds of free flights throughout the Midwest for families seeking financial assistance for specialized health care, camps for special needs, disaster response efforts, and other compassionate reasons. This includes support resources for individuals with conditions like Myasthenia Gravis, ensuring they have access to vital care.

Get help with financial assistance to pay bills and discover support resources for struggling families. Learn how to obtain financial assistance for bills, as well as free items for emergencies or long-term needs. Local agencies may be available near you to provide assistance.

The National Patient Advocate Foundation, as the advocacy affiliate of the Patient Advocate Foundation, is committed to enhancing health care access, quality, and affordability. This is achieved through policies, programs, and practices that not only optimize the experience and outcomes for patients and caregivers but also provide essential financial assistance and support resources for those affected by conditions like Myasthenia Gravis.

The PAN Foundation provides essential financial assistance, including copay grants, health insurance premium grants, and PAN transportation grants, to support individuals with Myasthenia Gravis and connect them with valuable support resources.

NORD's program offers vital financial assistance to individuals living with rare diseases, including those affected by Myasthenia Gravis, providing support resources for medication costs, travel assistance, and diagnostic testing.

The Assistance Fund (TAF) is an independent charitable patient assistance organization that provides vital financial assistance to patients and families facing high medical out-of-pocket costs. This support is crucial for those dealing with conditions like Myasthenia Gravis, as it helps cover copayments, coinsurance, deductibles, and other health-related expenses through various support resources.

Jewish Family Services Kansas City (JFS) provides comprehensive and compassionate care to help adults ages 60 and older live healthy, independent, and meaningful lives. Our programs address aging-related issues, including support resources for maintaining a home, transportation, health, mobility, grief, isolation, emotional concerns, and even financial assistance for those in need. We also offer specialized support for conditions such as Myasthenia Gravis, ensuring that all aspects of our clients' well-being are addressed.

The Shepherd’s Center of Kansas City, Kansas, is a welcoming interfaith, multicultural nonprofit dedicated to supporting and celebrating successful aging. Serving more than 1,200 people in Wyandotte County, we offer a variety of support resources, including financial assistance for those in need, as well as services focused on health, enrichment, education, and home assistance for individuals living with conditions such as Myasthenia Gravis.

MidAmerica Alliance For Access is a Kansas City-based non-profit that has been empowering individuals with disabilities, including those with Myasthenia Gravis, through the achievement of equal access and opportunity in the community since 1988. By providing independent living services, in-home caregiver services, and low-cost medical equipment and supplies through the new Accessibility Medical subsidiary, the Alliance For Access also offers financial assistance and support resources to build a community that is inclusive and accessible to individuals of all abilities.

The mission statement of the Kansas Department for Aging and Disability Services (KDADS) has been updated to more effectively reflect our commitment: Protect Kansans. Promote Recovery. Support Self-Sufficiency. We also aim to provide support resources, including financial assistance for those affected by conditions such as Myasthenia Gravis.

Social Security Disability Insurance (SSDI), often referred to as 'Disability,' offers financial assistance to individuals who have a disability, such as Myasthenia Gravis, that hinders their ability to work. This program serves as a crucial support resource for those in need.

Medicare is our country's health insurance program for people age 65 or older, but you may also qualify if you have permanent kidney failure, receive Disability benefits, or have conditions like Myasthenia Gravis. With different parts of Medicare available, you can find coverage options that align with your medical needs and budget, and there are also financial assistance programs and support resources to help you navigate your options.

When you or a loved one is experiencing a myasthenic crisis or extreme fatigue and weakness due to Myasthenia Gravis (MG), taking time off from work can be particularly stressful. The worry about job security may exacerbate an already challenging situation. However, if you are a covered employee, the Family and Medical Leave Act (FMLA) can provide support resources that may help, along with potential financial assistance.

The ADA does not provide a specific list of medical conditions classified as disabilities, including conditions like Myasthenia Gravis (MG). Instead, the ADA offers a general definition of disability that each individual must meet, which can vary in degree among different people. Some individuals with MG may require more accommodations and support resources to effectively perform their job, while others might need only a few adjustments. Additionally, there are various financial assistance options available to help those with disabilities manage their needs.

The Job Accommodation Network (JAN) offers free, expert, and confidential guidance on job accommodations and disability employment issues, including support resources for individuals with Myasthenia Gravis. JAN provides practical one-on-one assistance regarding job accommodation solutions, Title I of the Americans with Disabilities Act (ADA), related legislation, and options for self-employment and entrepreneurship, as well as information on financial assistance available for people with disabilities.

IndeBus, KCATA, Johnson County, and Unified Government Transit are collaborating as RideKC to offer friendly, affordable access to the Kansas City region. If you are an older adult, a person with a disability, or someone with low income, please see below for the support resources and financial assistance that may be available to you. We are here to help connect you to your community, including those who may be affected by conditions like Myasthenia Gravis.

Angel Flight Central's mission is to serve individuals in need by arranging charitable flights for health care or other humanitarian purposes. Each year, Angel Flight Central (AFC) volunteer pilots and supporters provide hundreds of free flights throughout the Midwest for families who require access to specialized health care, including those affected by conditions like Myasthenia Gravis. These flights also support resources for camps catering to special needs, disaster response efforts, and other compassionate reasons, all of which may involve financial assistance.

If a physical or mental impairment, such as Myasthenia Gravis, is preventing you from working and the SSA has denied you access to financial assistance, reach out to our St. Louis and Kansas City area Social Security Disability lawyers to discuss your right to appeal and explore available support resources.

Legal Aid of Western Missouri provides financial assistance to our low-income and elderly neighbors in civil (non-criminal) matters, ensuring they have access to essential support resources, especially for those affected by conditions like Myasthenia Gravis.